#1 07-03-2008 20:16:44

ssstique
Member
Registered: 07-03-2008
Posts: 8

New in tinnitus world since April 2007

Hello all,
When google got me this forum I instantly registered and am writing without really reading up all threads yet. I shall do so in a moment. First I want to write to share my experience with you all. I hope that I can give you with this a positive feeling, a feeling of hope. On many sites, the tendency is so much of dispair (which I totally understand) and I hope that with these few words, I give a positive stimulus to those who have given up hope.
Last April I went to a concert. No heavy metal band or hard core stuff, just a sweet concert with a nice singer behind his piano.
Ever since that concert, the hissing noise in my ears has not left me. It came together with hypersensitivity to sound. It got so bad that on most uncool days, turning a page of a book would drive me mad. I could also not attend public events because of the sound overload. Social isolation...
At night I would wake up because of the sound variations.
After a few months I seeked medical advice. My general practicioner (a homeopath) said: "What a bummer, I can't do anything for you."
So I went off searching on my own. Internet, hospital, specialised centre...
I have spent many hours in waiting rooms, have undergone many tests, seen many doctors, spent many euros... and I am still stuck with tinnitus in my left ear.
I'll try to be brief about my tribulations until now...
After the discouraging words of the GP I seeked advice at a university hospital. I was tested but not really listened to (as a patient of homeopaths I guess that one gets used to that). Went home with a nootrope (medication given to enhance brain activity basically for the elderly - no proof that it relieves tinnitus), a steroid nose spray, a see water nose spray, zinc and magnesium (was not tested on lack thereof). This made me sick after 10 days and I stopped everything. I came down with sinusitis and angina.
I went to a homeopathic nose-ear-throat doctor with whom I am in therapy since some 2 months. We work on tinnitus together. I have had one set of powders and am taking the second set now.
In parallel, I took 2 sessions with an osteopath (cranial osteopathy) but as the osteopath and nose-ear-throat doctor both predicted, given that the tinnitus is caused by excessive sound, it did no good and I stopped it. Nevertheless, it was well worth to try!
In the meantime, I have prescribed myself vitamin B complex (I am a vegetarian and therefore could lack this - you probably know by now the relation to tinnitus) and also ginkgo biloba, and I am not allergic to them thank god.
My specialist approved this initiative.
I will soon try acupuncture.
And now the good part: over time, my tinnitus got less loud and I am now able to concentrate and even read a book in silence.
I do not play tv or music loudly because that costs me too much in suffering, but apart from that my situation seems overall bearable. I can not cut down on sugar, salt, coffee or alcohol yet sad
People, please do not give up, and try to find your solution. If it helps you to join a forum than do that. If it only makes you depressed than please limit your visits to fora. Read up on conferences and research.
A specialist at hospital said that she could do laser on me and also electric pulses but I declined it. She agreed to my approach, which I found wise for a staff member of a strongly anti-homeopathy environment.
Please do not get discouraged when you read a tinnitus sufferer that you will always suffer it so better get used to it. This is not true! I know several people who "spontaneously" (what is spontaneous?) no longer suffer from tinnitus, so there you have it! Also, when you read that ginkgo is nonsense, please don't give up that easily. If you have enough funds, please do give it a try for a couple of months.
I hope to interact with you soon and I shall keep you posted of my future experiences in my combat against tinnitus.

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#2 07-03-2008 21:14:38

ssstique
Member
Registered: 07-03-2008
Posts: 8

Re: New in tinnitus world since April 2007

I forgot to add that when I started investigating into my tinnitus problem, it had been diagnosed that in the ear which has the tinnitus I have significant hearing loss (not caused by a trauma though, so maybe an old scar).
Worse still is that I can no longer sing!
I now sound false and horrible and no longer sing. My voice used to be crystal clear and quite nice. My range has changed dramatically and I sound like an old smoker.
I went to a vocal cord specialist at university, and it was diagnosed that my vocal cords are in perfect shape, that my potential as a great soprano is still there, but that logopaedics would not help because nothing is wrong with my vocal instrument, and that only a singing teacher could teach me make good use of my voice again.
I am thinking of going to a public music school in September hoping to find a singing teacher.
My question: does anyone have experience with voice changes appearing after the tinnitus declared?

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#3 08-03-2008 16:14:30

Thomas
Administrator
Registered: 28-08-2007
Posts: 1654
Website

Re: New in tinnitus world since April 2007

Hi Marie, 

Welcome to the forum.

I agree with much what you said in your opening post. The wealth of different advice and therapies on offer against tinnitus can be quite confusing and do more harm than good. It is best if you follow your own experiences and devise a personal strategy from there. This is at least how I got my tinnitus under control. First of all, by avoiding any nerve stimulants like caffeine and alcohol (which I still would recommend for everybody as it is healthier anyway), and secondly by the (accidental) discovery that the occasional painkiller (Paracetamol or Aspirin) calms down the tinnitus a lot (also alcohol-free beer). These particular measures may not work for everyone, but I am sure that there is some simple solution for everybody. It is just a matter of experimenting a bit, and once one has achieved some kind of control and initial improvement, it is not much of a problem anymore and it will improve almost by itself. On the other hand, the drawback with most of the various medical 'therapies' is that you make yourself dependent on others, which brings with itself a lot of stress, which in turn will even aggravate the tinnitus. So that's why I would recommend to anyone to make this as much a personal 'solo'-effort as possible.

By the way, in case you haven't read it yet, my home page is http://www.mytinnitus.de , where I have detailed more of my experiences and tips.


Thomas

P.S.: I have never heard about any voice change problem in this respect, so I can't comment on this.

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#4 10-03-2008 12:08:00

ssstique
Member
Registered: 07-03-2008
Posts: 8

Re: New in tinnitus world since April 2007

Thank you for your reply, Thomas.
I find your site helpful and positive.
Kind regards,
Marie.

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