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Hi I'm new here, my name is Sander (from The Netherlands)
This is my Tinnitus story
I went to a concert on the 24th of november 2012, the day before I had an argument (well big fight) with my friend since she forgot about going to the gig and planned something else. I actually didn't want to go anymore. I brought the tickets to her place and told her she should go with her sister but she talked me back into going. We were standing 2nd row, but there is quite a lot of room between the stage and the audience. We had a fantastic time and all was forgiven.
After it I didn't experience any trouble, I even went to bed immediately after I got home. It took a week when I experienced my first Tinnitus.
Everyone tells me it will go (My mother experienced it for a year and doesn't have it anymore), but it has now been 2 months in which it has gone down a little. After two weeks I even had to unplug the refrigerator etc because I couldn't handle the ringing it caused, now the sound is not reactive anymore but just 'there' in my head. White noise with the very rare spike of high hissing...
The last half year my family had a very stressful year with my grandmother passing away, and in october my mother got diagnosed with cancer. This all happened in a very short amount of time. I never cry but since then I was/am a hypersensitive emotional wreck. I was in arguments at work/with friends all the time and suffered from depression.
I experienced around 80 migraine attacks, I sort of counted them. I've always suffered from them. I also had a lot of sinus problems at the beginning of that year. I also suffered from extreme anxiety problems (sometimes I had to even leave the train because I was panicking so badly).
On the 29th of november I decided to start exercising again after a few weeks, as usual I over-exercised. Because with almost everything I do, I do it in an extreme way, working, eating, drinking coffee etc. and again got a migraine with aura (blurred rainbow moving vision). I took some ibuprofen. Actually, I took like six of these on the day of the concert because of severe headaches that day, because of tension. I always get headaches with new experiences etc because I tense up. I remember getting a migraine attack just before a concert a few years ago...
After the migraine had gone I woke up on the couch and went to my bed. I lied down and everything was fine, it took me a little while to get back to sleep.
Then I woke up at 4 at night with full blown white noise-ish Tinnitus. I completely panicked, this noise didn't seem to go down and only got worse when I became so emotional. Later I called the doctor because I read about the tinnitus problems people were having and I got scared it would never go. The (ENT) doctors told me I have no hearing damage and the audiograms were fine. Still the doctors seemed very laconic and told me to get used to it and live with it. That I won't I told them.
I since then have cut back on the cafeine and started eating more healthy (I used to eat a lot of chinese, spicy food, chocolate, bags of 400 gr m&ms in a week, sweets in absurd amounts etc).
After two months there is a slight decrease in volume, yesterday was even the most quietest it's ever been, but today (after a bad night of sleep, dreaming very heavily) was a bit worse.
My psychiatrist tells me it's all in between the ears (also literally) and when I sort out certain things in life this sound will fade slowly, a friend of hers also used to have it. She says it's like this alarm bell that is going off in your brain/head which is telling you that your body (and mind) is out of balance and causes you to be on this full blown Red Alert state. That all sounds very magical, but I have to believe it will go.
If someone could tell me it will be gone next year I would be the happiest person on the planet and not be even that bothered about it anymore for the most part.
I will keep you updated if anything changes
Take Care,
Sander
Last edited by Xander21 (27-01-2013 16:44:31)
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Hi Sander,
Welcome to the forum.
Cutting back on any excesses is certainly a good idea. It may not immediately solve the problem but set you on the right path. Day to day variations may however always occur to some degree (especially in the early phase), but this is no reason for concern, as it is just caused by the natural variation of the activity of the nervous system. This will get less with time though.
Thomas
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Hi and welcome,thanks for sharing,i went through a very similar pattern of panic and feeling low,but thanks to support from this forum and taking a few steps my T is not over but does stop for periods of time and then starts,then stops its been about 4 months.The only thing i am waiting for is my MRI result.Hang in there ,there are a few herbal meds i took which i feel helped me.
Please keep me/us posted.thanks
mazhar
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I have been quiet on the forum for the last few months as I have been working my way through the check list of things to try and get better. One of the items that I had considered but felt would have very low level of success was a chiropractor. I'm scared of them as was reluctant. I was made aware of a chiropractor that uses a device called an activator and does not use a forceful technique. I have been trying this now for two months.
This big part of this is that I went to the chiropractor and had x rays done then the consultation. At the beginning of the consult I would not reveal why I was there and had the Chiro tell me what was wrong with me first. After telling my that my back was in rather good condition, she went on to tell me my neck was a disaster and I must be having major migraines and pain related to this. Much of the pain and closed up feeling has been alleviated and the sharpness of the ringing has gone down. Not sure if it will really fix it but your post had some similarities.
Note that my caution here is that; my feeling is a chiro will only help you if you have an actual misalignment issue called a subluxation.
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This weekend I'm off to visit this cervical chiropractor, he is specialized in the head and neck and helped a lot of people with their tinnitus.
My T is lower since four days, I used to wake up to it being so loud but I can even sleep without any masking but I sometimes grab my pod to relax.
Yesterday when I was feeling a bit low about it all I grabbed my bike and went for a little spin, what happened afterwards was amazing, the Tinnitus was gone for like 15 minutes, then it started gradually coming back. Because the T set on after a migraine that was caused by over exercising, I was scared it was going to get worse, but it didn't.
I was scared of taking naps, because short sleeping periods really seemed to make my T go very high in the first 6 weeks, evertime I would wake up with this high ringing, it has been 2 weeks since that happened.
I drink some biological tea (camomille/ tisane paix) now which also seems to help. I can even sit in my living room and just relax.
Edit:
Experienced periods of silence on friday and saturday, I could sit in a silent room, it didn't last extremely long (15 minutes and 50 minutes)
I went to the fysiotherapy on monday, the guy moved my head to one side and the tinnitus went up for like 3 hours after that. I was so upset cause the sound really went crazy through my head. He says though that's a good sign cause it means that the problem lies there.
Experiment:
Today I ate some junkfood and m&ms and my tinnitus went very high, like I expected, apart from yesterday at the fysio, it hasn't gone up like that since a few weeks...
Last edited by Xander21 (05-02-2013 20:07:07)
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"My psychiatrist tells me it's all in between the ears (also literally) and when I sort out certain things in life this sound will fade slowly, a friend of hers also used to have it. She says it's like this alarm bell that is going off in your brain/head which is telling you that your body (and mind) is out of balance and causes you to be on this full blown Red Alert state. That all sounds very magical, but I have to believe it will go."
Sander, are you doing anything to reduce your migraine headaches?
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I take more rest and try not to get anxious at work knowing that I will have to go home to 'my sound'. There will always be moments when you get put to the test at work, but everyone knows about my condition and they are very sympathetic to me.
I don't drink any cafeine anymore and eat more healthy and on time, lots of my migraine attacks also happened after exercising. I've only had 1 in 2 months, when it used to be 3 times a week.
Don't worry and stress about small unimportant things (I used to worry about the tiniest thing), I always got worked up and then the aura and headaches came.
I used to exercise like crazy (spinning) but now I notice that after driving my bike to work it causes my tinnitus to go lower and more faint. Tonight I'll be spinning at home for a half hour, if it starts peeping I stop.
I also sing a little at home for relaxing, but I've noticed that when you sing in a more strained powerful way (putting pressure on your jaws and such) it causes the tinnitus to go up.
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Today was a dreadful day, I've been extremely anxious at work because two people I have to work with fight eachother all the time (since 2 months). This made it extremely difficult to function for me today, I find myself caught in the middle all the time...What happened was that my Tinnitus spiked a bit, this hasn't happened since a few weeks. I immediately knew it was to do with this situation and at home when I tried to relax I got a severe pain on my right temple. I can't seem to shake the ringing off now...
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Thanks for the reply, everything was checked, I still have some rare flare ups but it's much better now...I only hear it in a complete silent room and sometimes it fades so much I don't hear it, but when I get very tired or anxious it gets a bit worse...
Wish everyone the best, there are people who got 'cured'...so there's Always hope ;-)
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